Navigating the Challenges of Mom’s Dementia: A Daughter's Story

In this replay of an Aging & Amazing Book Club discussion, we engage in a deep and emotional conversation with Carolyn Birrell, discussing her personal experience as a caregiver for her mother, who had dementia.\ Carolyn, author of Walking with Fay: My Mother’s Uncharted Path into Dementia, shares her story of coping with the challenges of caregiving, its emotional toll, and the need to find humor and love in the face of difficult and unlovable behavior from her mother. She also shares the emotional story of the last days of her mother’s life during the height of the COVID-19 lockdown. Throughout, Carolyn emphasizes the need for caregivers to find encouragement in being more loving during this difficult process, even when faced with resentment and disappointment. One of the most notable insights shared is Carolyn's reflection on learning to see past the unlovable behavior of her mother and to remember the person she fell in love with. Quotes Balancing Care and Judgment: "One of the most frightening things for me during that time was the perception from others that I was being overreactive and controlling and was inserting myself into my mother's life unnecessarily." Caring for a Loved One with Dementia: "I was able to manage her quality of care, but I wasn't able to manage her quality of life." Finding Encouragement in Challenging Times: "When I wrote the book, I thought I was writing it for people who were feeling alone and I wanted them to know that no, you're not alone, that others have gone through this just like you. You're going to be okay and hang in there." Finding Humor and Love in Caregiving: "And I think what I really learned from this whole thing is trying to find the humor and the spirit of actual loving this person who has become oftentimes unlovable." In this episode, you will: ·     Uncover insightful tips for navigating the unique challenges of dementia caregiving ·     Understand the profound impact of COVID-19 on dementia care ·     Discover effective coping strategies for dementia caregivers during challenging times. ·     Learn about the valuable support and resources available through the Alzheimer's Association support groups After the podcast Read Carolyn’s AlzAuthors post Purchase Walking With Fay now Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Carolyn Facebook Instagram LinkedIn Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

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Welcome to the AlzAuthors podcast! We’re so glad you found us. We're the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com. Featuring Marianne Sciucco, RN Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease. Learn more about Marianne at AlzAuthors.com. Purchase "Blue Hydrangeas" Featuring Christy Byrne Yates, M.S., LEP Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology. Learn more about Christy at AlzAuthors.com. AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.