Untangling What the Hell Happened to My Brain with Kate Swaffer

Australian Kate Swaffer is a humanitarian and activist for disability rights in dementia and aged care. She's the Chair, CEO and co-founder of Dementia Alliance International, a global advocacy and support group for people living with dementia. Kate is also living with younger onset dementia, diagnosed in 2008 at age 49. She has won many awards for her work, including the 2018 Australian 100 Women of Influence Global Leader, and the 2017 South Australia Australian of The Year. Kate is an elected board member of Alzheimer’s Disease International, and a current PhD candidate at the University of South Australia. Her first dementia book, What the Hell Happened to My Brain? Living Beyond Dementia, and her second book, Diagnosed with Alzheimer’s or another dementia, co-authored with Associate Professor Lee-Fay Low, were released in 2016. She has also written and published a book of poetry, Love Life Loss - A Roller Coaster of Poetry Volume 2: Days with Dementia. Since 2010, Kate has given many keynote presentations on dementia, human rights, disAbility, discrimination, stigma, the lived experience of dementia, dementia-enabling design principles, language, Prescribed Disengagement®, Information Technology for people with dementia, dementia policy, and loss and grief. In this episode we discuss how she managed to complete two master’s degrees and part of a PhD post diagnosis, her life as an “accidental activist,” and how to break down the wall of silence that surrounds a dementia diagnosis. Read Kate’s AlzAuthors Post: https://alzauthors.com/2016/07/19/meet-kate-swaffer-author-of-what-the-hell-happened-to-my-brain/  Start reading What the Hell Happened to My Brain? now! https://amzn.to/3xuIqZG Start reading Diagnosed with Alzheimer’s or another dementia now! https://amzn.to/2VtmQ9K Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Kate Swaffer Website: https://kateswaffer.com/ Dementia Alliance: https://www.dementiaallianceinternational.org/ Blog: https://kateswaffer.com/daily-blog/ Facebook: https://www.facebook.com/kate.swaffer Instagram: https://www.instagram.com/kateswaffer/ Twitter: https://twitter.com/KateSwaffer LinkedIn: https://www.linkedin.com/in/kate-swaffer-502a5b13/ YouTube: https://www.youtube.com/channel/UCZZQitZb0pttEpGxNLwldjg About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know Shop our Store Join our book club

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Welcome to the AlzAuthors podcast! We’re so glad you found us. We're the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com. Featuring Marianne Sciucco, RN Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease. Learn more about Marianne at AlzAuthors.com. Purchase "Blue Hydrangeas" Featuring Christy Byrne Yates, M.S., LEP Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology. Learn more about Christy at AlzAuthors.com. AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.