Episode 016: FDA Listening Session

Jen Ives and John Graybill talk with Brad Williams, of the Jain Foundation, about the upcoming FDA Listening Session for LGMD. This is the first ever listening session in which the FDA will listen to LGMD individuals about how their type of LGMD has impacted their life. The session is set for October 20, 2020. Jen and John ask Brad questions like, how often dose the FDA listen to patients, what is a listening session and why is it important? FDA Listening Session Brad William's YouTube Page ______________________________ Connect with Jen and John: Subscribe on YouTube Visit Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG

Om Podcasten

Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular Dystrophy BL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.