Nothing about us without us: patient-led policy and advocacy
We're back from our summer break and our host, Sam Pauly, is delighted to be joined today by Dr Orla Galvin, Executive Director of the European Federation of Neurological Associations (EFNA) to discuss the important role patients play in guiding policy and leading advocacy in the brain space, particularly as the "experts" in their own brain conditions. A common phrase in the community always is, "nothing about us without us", a strong call to decision-makers to ensure that the people most affected by their decisions are involved from the beginning.Accompanied by Dr Elke De Witte, Head of Project Development at the European Brain Council, Sam explores the importance of patient involvement in policy and advocacy, the challenges and roadblocks faced to do so (and how to overcome them) and innovative approaches for improvement at present and in the future.For more information, visit http://efna.net/ and braininnovationdays.eu