5 - We Are Visible: Karina Sturm

Award-winning filmmaker and journalist Karina Sturm joins the show to talk about Ehlers-Danlos Syndrome, a rare connective tissue disorder she lives with. She opens up about the medical gaslighting she experienced during her long path to diagnosis and how she transitioned from laboratory technician to chronically ill patient to journalist and filmmaker. Karina then talks about her feature-length film, We Are Visible, the challenges she faced while making it, and the false ‘fabricated or induced illness’ (FII) allegations many of her interview subjects experienced. 'We Are Visible' highlights the challenges people living with invisible illnesses face every day, specifically in the context of Ehlers-Danlos Syndrome. The film features seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs.

Om Podcasten

Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).