9 - Caring in a Crisis Pt 4 - Unlocking Bryson's Brain: Keith McArthur

Keith has dedicated the past few years of his life to finding a cure for his son Bryson who lives with a rare brain disease that has left him unable to walk or talk. But along the way, he began asking himself, "Would Bryson want to be cured?" In Part 2 of our interview, Keith discusses the ethical considerations surrounding curing a disability, the motivation behind his podcast Unlocking Bryson’s Brain, and the lessons he's learned from Bryson. If you haven’t listened to part 1 yet, click here to listen.

Om Podcasten

Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).