65 - Meet Sydney

Today’s conversation is with Samantha and Addison, the parents to 3 year old Sydney from Ceresco, NE who has been diagnosed with Infantile Neuraxonal Dystrophy; a very rare genetic disease that only affects 300-500 people worldwide. Sydney has a profound impact on anyone she comes in contact with and leaves an imprint on peoples hearts. This episode lets us in on who Sydney is and her complicated medical journey. Connect with Addison and Samanthahttps://www.facebook.com/groups/sydthekid/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/

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Go Shout Love tells the stories of amazing kids on rare medical journeys and sells creative apparel inspired by the kids to benefit their families. In the GSL podcast, we interview the parents of these amazing kids and offer other conversations designed to inspire and encourage anyone who listens.