68 - Meet Emma & Abby - Part 1

Today we have with us Mark and Mariah the parents to Emma and Abby from Centennial, Colorado. These sweet sisters not only share a powerful sibling bond, but also share an ultra-rare undiagnosed genetic mutation that is so rare that they are the first two cases in the world. This mutation leads to infantile Spasms, Epilepsy, Lennox-Gastaut Syndrome and more. They share with us their very unique medical journey as well as the impact their close community has had on them. This is Part 1 of 2. Connect with Mark and Mariahwww.lightningandlove.orghttps://www.instagram.com/lightningandlove/https://twitter.com/mariahgillaspieConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/

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Go Shout Love tells the stories of amazing kids on rare medical journeys and sells creative apparel inspired by the kids to benefit their families. In the GSL podcast, we interview the parents of these amazing kids and offer other conversations designed to inspire and encourage anyone who listens.