59: Extra Pelvic Endometriosis (Part 1) with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare

As a part of Endometriosis Awareness Month, we speak with Wendy Bingham DPT, the founder of the non-profit called ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics and appropriate treatment referrals. In this episode, we speak about why the definition of endometriosis desperately needs an overhaul and the proposed definitions from the scientific community for it. Likewise, we speak about the problems with the current definition of extrapelvic endo. We discuss the ICD (International Classification of Diseases) codes and why these negatively affect our ability to truly know the statistics of extrapelvic endo. Finally, we talk about various theories to the origin of endo, and why it’s vital that the medical community understand that extrapelvic disease is much more common than they believe. WENDY'S WEBSITE: extrapelvicnotrare.org WENDY'S INSTAGRAM: @extrapelvicnotrare WENDY'S FB GROUP: ExtraPelvic Not Rare Endo Support and Education Group CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Om Podcasten

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! (2) Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide! Remember, the info presented here is educational info only and NOT medical advice.