Rare Disease Advocacy with Leah

This week on the Mimosas with Moms Podcast, Abbey welcomes Leah, parent advocate for rare diseases, epilepsy, and medically complex parenting struggles! To continue to bring awareness to Birth Defects Awareness Month, Abbey and Leah talk about Leah’s personal experience welcoming her son with a rare form of epilepsy and a rare disease. After a misdiagnoses nearly ending her sons life, Leah fought for proper care for her son. How has this experience changed Leah’s family and the course of her life? Let’s talk about it, CHEERS!! ——————————————— You can find Leah: IG @metabolic_mama Blog - metabolicmama.org FB /metabolicmamapde Email metabolicmama@gmail.com Interested in learning more about rare disease legislative advocates? Visit: https://rareadvocates.org/about-us/ And to get involved, stay updated, donate and more! Visit: Bc it’s a program created BY every life https://everylifefoundation.org ——————————————— Instagram @mimosaswithmoms FB /mimosaswithmoms Email 2mimosamoms@gmail.com

Om Podcasten

You, The Mother is a podcast dedicated to supporting, empowering, and connecting all parents in all seasons of parenthood. I’m Abbey Williams, I began my motherhood journey as a young single mom, before the era of parenting gurus being at your fingertips, online parenting groups, and before most of my peers. Now, 12 years later, I’m a married mom of four raising my blended family and offering support, empowerment, and connection on this platform for thousands of other parents to feel a little less alone. Join in the community over on Instagram @youthemother and www.youthemother.com