The Importance of Seeing Rare Disease Patients Holistically: Eric & Kristi Levine, Parents of a Child with CACNA1A

In this candid Year of the Zebra interview, parents Eric and Kristi Levine discuss the challenges of caring for their three-year-old son, Trey, who has complex medical needs caused by the rare genetic mutation, CACNA1A. Join host Michael Carrese as we learn about the importance of community support, the ongoing search for treatment options, and the advice they have for clinicians caring for patients and families living with rare disorders.

Om Podcasten

Join host Lindsey Smith and other Osmosis team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan, as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.