How One Patient Organization Drives Drug Development

Annette Bakker, CEO of the Children's Tumor Foundation, discusses the complexities of a group of rare genetic conditions that cause tumors to grow on nerves throughout the body, the foundation's role in advancing research and drug development, and what other patient organizations can learn from its strategic approach.

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.