16 I Caregiving & Family Pt 1: What It's Really Like To Receive Long-Term Care When You Have a Disability

In this episode we meet Kathleen Downes- a 31-year-old woman who lives with her parents and dog in New York. Kathleen has cerebral palsy, which means she needs constant care to do daily activities. Kathleen talks about the complicated relationship between care recipients and their families, the broken policies that force impossible choices, and the radical act of finding joy despite a system designed for isolation.  _ The episode transcript can be found here.  _ Connect with us:  EMAIL: hello@refamulating.com.  WEBSITE INSTAGRAM TIK TOK _ Subscribe to our Substack for more refamulating! We write about how refamulating looks in our lives, share resources we’re using as we make this show and share special bonus content for paid subscribers. _ Our team  Host: Julia Winston Producer: Claire McInerny  Audio Engineer: Josh Gilbert Theme Music: Luke Top – We are a member of the Feelings and Co network.  Learn more about your ad choices. Visit podcastchoices.com/adchoices

Om Podcasten

Refamulating is a podcast that celebrates different ways to make a family. A generation ago, most Americans were guided by the idea of the nuclear family: a mom, a dad, two kids, and a derpy dog. Many still have a family like this, and that’s great! But the numbers show it doesn't represent the majority of American households. In fact, there is no one-size-fits-all for what a family should look like. We’re collectively reformulating our understanding of what makes a family in today’s world. We call this refamulating, and this show invites us to understand it one story at a time. On each episode of Refamulating, host Julia Winston delivers emotionally honest stories of real people with nuanced experiences that census data could never tell us. Think queer parents, egg and sperm donors, surrogates, blended families, child-free folks, tales of communal living, and much more.