Special Parents Confidential

Special Parents Confidential 64 5p Syndrome aka Cri du Chat

av Special Parents Confidential | Publicerades 10/31/2018

5p Syndrome aka Cri du Chat. Cri du Chat, aka 5p Syndrome is a chromosomal deletion disorder resulting in a wide spectrum of intellectual and developmental abilities. Each year in the United States, approximately 50 to 60 children are born with Cri du Chat, or 5p Syndrome. These individuals will likely need a lifetime of support. Parents who have children born with this rare disability are usually given a very grim prognosis. In many cases they are told that their child will never speak, never walk, and not be able to accomplish much of anything. Defying Expectations. But, as often is the case, many children with Cri du Chat go on to have remarkable breakthroughs and are able to overcome a lot of these challenges. New therapies and treatments along with improved technology has allowed many kids to exceed and succeed far better than anyone expected. Loving You Big  Like most people, I was unaware of Cri du Chat, until I was contacted by Leah Moore, who writes the blog, Loving You Big. Her daughter Jordan, now age 7, was born with Cri du Chat, and Leah’s blog has some remarkable stories of how her family’s life goes on with a child who has such challenges, but also such amazing gifts. Leah is a high school English teacher in the New York City area, and can’t help but find the irony of her life, as she says, “in love with words”, yet now faced with a daughter who struggles so hard to speak. She also talks about coping with her emotions and that she now also has two twin sons who bring their own set of issues. It’s a story that many parents of special needs kids can relate to. Links mentioned in the podcast: Leah’s 3 favorite posts from her blog: The Irony of Language.   Yes My Hands Are Full. Welcome To The World, Baby Girl. Video of Leah and her husband Zac, and their daughter Jordan. Resources: 5p Minus Society.  The Danger of a Single Story – Ted Talk by Chimamanda Ngozi Adichie.   Reminder. Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms. A great way to get in touch with us and comment about episodes you’ve listen to is on our Facebook Page. Please “like” the page and tell us what you think. You can even suggest topics for upcoming episodes and ask questions about previous shows. Special Parents Confidential is now available on Spotify! Just follow the link

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Being a parent of a special needs child is a full time job. Finding the time to attend seminars or support group meetings can be a challenge. Special Parents Confidential is your answer. This podcast presents interviews with the experts you’d see at those seminars and support groups on the issues that matter most for you. Education. Medical. Legal. Advocacy. Political. Social. Religious. Credible experts with accurate, proven information. We also provide links on our website, www.specialparentsconfidential.com, to every expert’s website and other resource websites. All easily accessed 24/7/365 - wherever you are and whenever you want.