Rachel Pastiloff - Raising a Child with Prader-Willi Syndrome

At The Brain Possible, we love connecting with fellow mama warriors who fiercely advocate for their exceptional children. There’s an energy they bring to the table--one filled with tenacity and love--that’s impossible not to gravitate toward. Now, we get to do that again.On this podcast, we’ll be speaking with Rachel Pastiloff. Her son Blaise has autism as well as Prader Willi Syndrome, a rare genetic condition that means, if left alone, he will literally eat himself to death. Rachel’s other son Maddock has ADHD and a mood disorder. Oh, and did we mention she’s a single parent?We're excited to speak to Rachel because she’s outspoken about what it’s really like--the hard days and the wonderful days and everything in between--raising not only one, but two exceptional kids. Her authenticity in how she shows up in this world feels like fresh air. We recently wrote about her on our blog--which you can head over to the website to find--but we wanted more. We wanted you to hear her voice, because it’s such an important one. Together, we’ll explore Prader Willi and what it’s like for Rachel and her family. You don’t want to miss this conversation. Thank you for being here.Support the show

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The Brain Possible podcast shares the inspirational stories of parents and caregivers--as well as interviews with doctors, authors, leading thinkers, and paradigm-shifters in the realm of pediatric health and wellness--all in an effort to change the conversation around childhood brain injury from limitations to possibilities.