Episode 3: "Get to Know the Person Before the [Kidney] Disease"
On Episode 3, guests Morgan Reid & Patrick O. Gee PhD, JLC join us to share their journeys as patients with kidney disease - who received both dialysis and kidney transplants. They share incredibly powerful personal experiences and their advice for kidney healthcare providersNephrons: Elinor Mannon (http://twitter.com/elinormannon), Sam Kant (http://twitter.com/kantsmd), Matthew Sparks (http://twitter.com/nephro_sparks), Samira Farouk (http://twitter.com/ssfarouk)Guests: Morgan Reid (http://twitter.com/_morganreid), Patrick O. Gee (http://twitter.com/pgee51)Links from the Show:3:05 Delayed graft function (https://www.karger.com/Article/FullText/491558)5:27 Peritoneal Dialysis (https://www.niddk.nih.gov/health-information/kidney-disease/kidney-failure/peritoneal-dialysis)7:10 IgA nephropathy (https://www.niddk.nih.gov/health-information/kidney-disease/iga-nephropathy)9:57 Lupus nephritis (https://www.niddk.nih.gov/health-information/kidney-disease/lupus-nephritis)11:00 Living kidney donor evaluation process (https://www.kidney.org/transplantation/livingdonors/testing-living-donor-evaluation-process)12:00 Mistrust, misperceptions, and miscommunication: A qualitative study of preferences about kidney transplantation among African-Americans (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365418/)13:00 Social media & living kidney donation (https://kidney360.asnjournals.org/content/1/12/1419)16:00 Health Literacy in African-American Communities: Barriers and Strategies (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7365659/)17:37 Social determinants of health & NephMadness (Patrick O. Gee) (https://ajkdblog.org/2022/03/18/nephmadness-2022-whom-do-you-see-when-you-see-me-please-my-humanity-over-my-race/)18:00 Chronic kidney disease classification (https://www.kidney.org/professionals/explore-your-knowledge/how-to-classify-ckd)23:55 African-Americans suffer from highest rates of end stage kidney disease (ESKD) in comparison to other racial ethnic groups (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6200351/)25:11 The Organ Thieves: The Shocking Story of the First Heart Transplant in the Segregated South (https://www.publishersweekly.com/9781982107529)26:24 Donate life (https://www.donatelife.net/)26:30 Living donor protection act (https://www.kidney.org/sites/default/files/LivingDonorProtectionActInfographic_20170413.pdf)26:55 Clinical trials seek to fix their lack of racial mix (https://www.aamc.org/news-insights/clinical-trials-seek-fix-their-lack-racial-mix)34:00 National Kidney Foundation peer mentoring program for patients with kidney disease (NKF PEERS) (https://www.kidney.org/peers)36:05 Vaca frita (https://www.foodandwine.com/recipes/vaca-frita-crispy-beef)