Episode 29: Pierce and Nicole - life with Moebius Syndrome

At 20 weeks pregnant, doctors told Nicole and her husband Ben that something was wrong with their child's brain. When Pierce was born he struggled to breath, and at six weeks he had a tracheostomy. But it wasn't until Nicole googled facial paralysis when Pierce was 6 months old that they discovered he had Moebius Syndrome. This episode, released for the 24th of January, Moebius Syndrome Awareness Day, tells their story. 

Om Podcasten

This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.