Rett Syndrome with Beth Johnsson

Beth Johnsson joins us to talk about Rett Syndrome. This rare genetic disorder affects brain development, resulting in severe mental and physical disability.It's estimated to affect around 1 in 10,000 girls born yearly and is rarely seen in boys.Beth talks about her personal experience with her daughter, Hannah, who was diagnosed with the condition when she was very young. Hannah now has a complex list of disabilities, including epilepsy, scoliosis, apnoea, respiratory problems, and digestive...

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The Sunflower Conversations are where we explore hidden disabilities through the prism of the Hidden Disabilities Sunflower.In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower lanyard, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities.