Tia | To Trach or Not to Trach: Making Medical Decisions for our Children

We know that it is scary to learn that your child(ren) may need extra pieces of medical equipment to survive. Medical technology should never be positioned to us as a “last resort” when in reality it is often life saving game changers for our kids.  Tia is here, sharing her family’s story. I met Tia and Hendrix when Benji and I were in the NICU and then we continued to cross paths frequently when Lorelei and I were in the PICU.  Tia talks about what it was like when they began to discuss a tracheostomy for her son, how it made them feel, the fears they faced and where they are now.   “I think that when we think of medical devices or medical equipment with kids, it's like, ‘Dang, what quality of life are they gonna have?’ Well, they're gonna have the quality of life that you provide for them!” - Tia I hope today's episode with Tia helped you see that even in the midst of big life decisions for your children, you have other families who see you and know how you feel. What big decisions have you had to make for your children? How has it made you feel? Let’s talk about it in the When Autumn Comes Society or send me a DM on Instagram!   Catch up with Suz: Instagram When Autumn Comes: WAC Instagram WAC Facebook Page WAC Society Facebook Page Links and resources: WAC is a program of the Apricity Hope Project Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.  If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more 4 am moms with medically complicated, rare, beautiful children.

Om Podcasten

We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the Apricity Hope Project nonprofit. Our mission is to care for caregiver. Learn more at apricityhope.org